Our mission

Love turned into action.

We honor J.C. by helping knowledge, advocacy, research, hope, and human connection travel farther.

Why we exist

The J.C. Ragsdale Foundation exists to honor J.C.'s life by advancing awareness, education, advocacy, and research for Lennox-Gastaut Syndrome, epilepsy, and SUDEP while providing hope and support to individuals and families affected by these conditions.

Our work is in its beginning. We are listening, learning, and building responsibly. Programs, partnerships, and measurable impact will be shared only as they become real.

Awareness

Bring LGS, epilepsy, and SUDEP into clearer public view.

Education

Connect families with understandable, trustworthy information.

Advocacy

Help amplify the needs and voices of affected families.

Hope & Support

Build community so no family has to face the journey alone.

Our promise

  • Lead with people, not diagnoses.
  • Share clear information from credible sources.
  • Speak about SUDEP honestly and compassionately.
  • Make room for joy alongside grief and challenge.
  • Never lose sight of the individual moments that make a life.